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On April 25 of this year I gave birth to the sweetest little baby boy, Patrick James. My husband and I knew something was wrong when the nurse kept asking us if he looked like our other boys. She went out in the hallway with my Ob and then the two of them came back in to tell us that our baby was showing signs of Down Syndrome. We were shocked but hopeful that they were wrong. About 7 hours later the nurse came to take a rectal temp on Patrick and it was then that we discovered that he didn’t have an anus. The pediatrician came in and said this was a pretty significant sign that he probably did have Down Syndrome. Within the hour he was transported down to Children’s Hospital where he underwent surgery. My sweet baby was given a colostomy. He developed an infection and we weren’t sure that he would make it. I remember sitting in the rocking chair at the hospital holding my baby and crying. I am ashamed to say that at the beginning I had thoughts in my head like, “Maybe he shouldn’t make it” “Maybe he’d be better off and we would mourn and grieve and then move on.” But on this day while I held him and cried, I prayed to God and offered it all up to him. I told God that I accepted this baby as the gift that he was and if God would heal him then I would take him home and love him. Patrick’s health changed immediately after that. He began to heal and within a few days he came home. The doctors told me his wound from his infection would take about 2 months to close, but it closed in two weeks!!!! My little baby is a miracle. His health scare really put the the Down Syndrome diagnosis in perspective.

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6 Comments (+add yours?)

  1. Wendy Kennedy
    Aug 13, 2011 @ 06:15:40

    Lisa,

    Thanks for sharing the blog with us. Your story is heartfelt and inspiring. We love you guys!

    Wendy

    Reply

  2. Denise Goedker
    Aug 14, 2011 @ 23:17:37

    Lisa,
    I just saw your email about this blog. Of course, I am up way past my bedtime, but I am so encouraged and inspired reading all these entries! You are absolutely amazing, Lisa!! Thank you from the bottom of my heart in sharing your experience, wisdom and love~
    oxoxo Denise

    Reply

  3. Noah's Dad
    Dec 26, 2011 @ 01:56:44

    Hope you guys had a VERY merry Christmas!
    🙂

    Reply

  4. Anita
    Feb 08, 2012 @ 23:26:53

    I just saw a comment on Noah’s Dad that you left…so I looked at your story…all I can say is…are we related? LOL…our stories have some common threads. My son Nicholas was born with Down syndrome. He had a colostomy due to Hirschbrung’s disease. I had to learn all the poop processes (I even got a couple of good tricks from some traveling nurses…things you can do at home that aren’t welcomed at the hospital). Pull through surgery. Heart surgery. G-tube…all the “good stuff”. But what really caught my attention is your feelings about your other boys. I have a 5 yr old daughter and Nicholas has a twin sister! I haven’t found (until I saw your post) anybody who truly could understand how afraid I am of him being an embarrassment or bother to his sisters. Don’t get me wrong, they absolutely LOVE him. But what about when they get older? And have their own families. Will their mates be as accepting to their brother, and how will it affect ALL of their relationships? Because I think of this so often, I find myself “pushing” Nic to do things for himself. I try not to let him think that it’s “acceptable” for him not to be able to do things for himself. …I feel like you know how I feel…hang in there!

    Reply

    • lisa
      Feb 22, 2012 @ 23:15:17

      Anita, after talking to some adults who have siblings with Down syndrome, I can’t help but feel that our other kids will be just fine. I actually think that they will be better for having our kids with DS in their lives. We didn’t have to do the heart surgery, thank God. But our colostomy reversal is scheduled for next week. But I agree with you that we should push these kids to be able to do as much as they can for themselves. How old is Nicholas?

      Reply

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