Everything is OK

Wow, what a day we have had.  I got a phone call from Children’s Hospital this morning at 8:30 telling me that if I could be there in a half an hour they could do the EEG immediately.  I bundled up my little guy and met David down at the hospital.  Patrick had one of his “episodes” in front of the nurse beforehand.  She said that it really did look like a seizure to her.  They hooked him up and we sat and cried while we tried to distract him.  The nurse left the room for a little while and when she came back she told me that she was with the neurologist in the other room watching the monitor.  She said she is never allowed to tell the parents the results but that the neurologist instructed her to tell us that his EEG was “beautiful.”  He absolutely does NOT have Infantile Spasms nor is he having seizures.  We both began to cry.  Our next step was to go to a different clinic for the MRI.  This was hard to see.  They sedated him and hooked him up to the monitoring device.  It brought back lots of  bad memories from right after he was born.  We sat there with him for about 45 minutes while they ran the MRI.  We then went into another room to wait for him wake up.  The nurse was telling us that the radiologist would contact our pediatrician who would contact us about the results.  David told her that was a problem.  I explained how we were unhappy with our pediatrician and why and that we were going to leave to find a different doctor.  The radiologist must have overheard this because he walked right in to tell us that he usually doesn’t get to talk to parents but our baby was totally fine.  His brain is developing normally and other than some gunk in his sinuses, there was nothing on the MRI.  He seemed a bit taken aback when I jumped up and hugged him.

Shortly after the radiologist left the room the nurse walked in to tell us our pediatrician was on the phone.  She handed me the phone and he proceeded to tell me that it looks like we got good news today.  He said he was really surprised because he really thought it was infantile spasms.  He told me he was sorry he scared me but better to be scared than not to worry at all.  I just thank you and hung up.  The radiologist gave us a new name of a pediatrician who would be better suited to our family.

Praise the Lord as my grandparents used to say.  Angels have watched over my baby yet again and I feel so blessed to have been able to bring him home again this afternoon.  Thank you to everyone for all of the prayers today!!!!  Proof positive in the power of prayer!!

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3 Comments (+add yours?)

  1. lauriehavonlady@gmail.com
    Jan 10, 2012 @ 21:30:38

    So happy to hear PJ’s good news. We will continue to pray for PJ and all of you. Also I am reminded to remind you that PJ is receiving love from above :).

    Reply

  2. Uncle Paul and Aunt Jan
    Jan 10, 2012 @ 21:41:14

    Lisa and Dave… we are glad to hear your good news and will keep little PJ in our thoughts and prayers. God bless… Uncle Paul

    Reply

  3. Julie
    Jan 13, 2012 @ 20:32:16

    Dear Lisa – I am praying for Patrick’s surgery to go perfectly and you & Dave to remain strong. You all are in our thoughts and prayers especially these days. Please let us know if there is absolutely anything we can do to help support you &/or your beautiful growing family of boys! Please consider anything we can do to help lighten your load – we would be honored to show our support – even if it is with some shared pizza, soda-pop (+wine/beer for adults of course!) & conversation on an odd or cold winter night. XOX, Love & God’s Full Blessings! Your friend, Julie + 3.

    Reply

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